Challenge
To gathered data within a paediatric population that can be used to provide evidence for clinical practice. Currently there is little scientific evidence on the benefits of assistive technologies, potentially due to the difficulty in measuring such benefits outside of the clinic.
Issues such as device abandonment and associated costs as well as overinflated perception of high-quality expert care by the patient and family can not be adequately addressed without this data.
It is essential to know if the interventions are working, to prevent device abandonment, false hopes, and unnecessary effort.